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11 小时
on MSN
7-year-old girl with rare disease forced to hide from sun, cover every inch of skin ...
Adeline Tonhaeuser can’t play outside during the day with the other kids. When she goes to school, the 7-year-old from ...
Domestic
2 天
Scleroderma: Rare Autoimmune Disease You Must Know About
Scleroderma is a complex and rare autoimmune disease characterised by the hardening and tightening of the skin and connective ...
8 天
on MSN
20-Year-Old with 'Butterfly' Skin Disease Is Striving for Independence: 'You Just Gotta ...
Brandon Joseph, 20, opens up to PEOPLE seven years after his first interview. He talks about overcoming daily challenges and becoming more independent while living with epidermolysis bullosa, a rare ...
unilad
4 小时
Girl, 7, forced to hide from sun and completely cover skin after life-changing diagnosis
Parents of Wisconsin girl Adeline diagnosed with a very rare metabolic disorder have spoken out to raise awareness of the ...
People on MSN
1 天
Star-Studded Rock4EB! Concert Raises Over $1 Million for 'Butterfly' Skin Disease ...
raising over $1 million in one night for research and to find a cure for the rare skin condition. The foundation is the only ...
13 天
Teen Recalls Being 'Gauzed Up Like a Mummy' After Rare Disease Left Her 'Burning from the ...
I vividly remember thinking, ‘Am I going to die?’” Paige LaCombe tells PEOPLE about her experience as a young girl ...
5 天
Buy Rating Justified by Azitra Inc’s Advances in Rare Skin Disease Treatments and ...
Jason McCarthy, an analyst from Maxim Group, reiterated the Buy rating on Azitra Inc (AZTR – Research Report). The associated price ...
1 天
on MSN
Diagnostic guidelines don't catch all rare cancers, study finds
Current diagnostic guidelines for a rare type of lymphoma miss a subset of patients with the disease, according to a ...
16 小时
Amgen's muscular disorder drug meets main goal in late-stage study
Amgen said on Tuesday its experimental drug, rocatinlimab, met the main goals in a late stage study testing it as a treatment ...
15 小时
Girl, 7, ‘allergic' to light must hide from the sun, cover every inch of skin
After mystery symptoms as a baby, she was diagnosed with a rare disorder that forces her to shun all UV light. She got to be ...
13 天
on MSN
New biomarkers can help target treatment for chronic skin disease sarcoidosis
Sarcoidosis is a rare systemic disease that afflicts an estimated 200,000 people in the U.S., more often people who are Black ...
4 天
US FDA approves Zevra's treatment for rare genetic disease
The U.S. Food and Drug Administration approved Zevra Therapeutics' drug for a rare and fatal genetic disorder, making it the ...
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