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19 小时
Girl, 7, ‘allergic' to light must hide from the sun, cover every inch of skin
After mystery symptoms as a baby, she was diagnosed with a rare disorder that forces her to shun all UV light. She got to be ...
Singularity Hub
1 天
First Panda Stem Cells Made in the Lab Bring New Hope for These Beloved Bears
Scientists suggest we might conserve pandas by converting their skin cells into stem cells—and eventually reproductive cells ...
People
1 天
Star-Studded Rock4EB! Concert Raises Over $1 Million for 'Butterfly' Skin Disease ...
Their involvement began after their son Brandon, now 20, was born with epidermolysis bullosa. EB — often called the ...
2 天
Regulatory News | Today's Latest Stories | Reuters
Reuters.com is your online source for the latest news stories and current events, ensuring our readers up to date with any ...
3 天
Sebastian Stan Says Playing a Man with a Facial Disfigurement Alongside Adam Pearson 'Was ...
In an interview with PEOPLE surrounding their A24 drama A Different Man, Stan, 42, says Pearson's life experience proved ...
FiercePharma
4 天
After prior snub, Zevra clinches FDA approval for rare lysosomal storage disorder drug Miplyffa
For Zevra Therapeutics and its rare neurodegenerative disease med arimoclomol, the second time’s the charm. | The ...
5 天
US FDA approves Zevra's treatment for rare genetic disease
The U.S. Food and Drug Administration approved Zevra Therapeutics' drug for a rare and fatal genetic disorder, making it the ...
News Medical
5 天
Do long genes hold the key to understanding the genetic underpinnings of aging?
Review highlights the growing evidence that aging is linked to reduced expression of long genes, offering insights into ...
5 天
Movie Review: Provocative, genre-bending 'A Different Man' gets under our skin in ...
Imagine you could wake up one morning, stand at the mirror, and literally peel off any part of your looks you don't like — ...
6 天
Sebastian Stan calls out reporter for describing co-star as a ‘beast’ over facial ...
Sebastian Stan defended Adam Pearson, who has neurofibromatosis, at a press conference for their film "A Different Man." ...
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