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15 小时
on MSN
7-year-old girl with rare disease forced to hide from sun, cover every inch of skin ...
Adeline Tonhaeuser can’t play outside during the day with the other kids. When she goes to school, the 7-year-old from ...
Domestic
2 天
Scleroderma: Rare Autoimmune Disease You Must Know About
Scleroderma is a complex and rare autoimmune disease characterised by the hardening and tightening of the skin and connective ...
13 天
Teen Recalls Being 'Gauzed Up Like a Mummy' After Rare Disease Left Her 'Burning from the ...
I vividly remember thinking, ‘Am I going to die?’” Paige LaCombe tells PEOPLE about her experience as a young girl ...
8 天
on MSN
20-Year-Old with 'Butterfly' Skin Disease Is Striving for Independence: 'You Just Gotta ...
Brandon Joseph, 20, opens up to PEOPLE seven years after his first interview. He talks about overcoming daily challenges and becoming more independent while living with epidermolysis bullosa, a rare ...
19 小时
Girl, 7, ‘allergic' to light must hide from the sun, cover every inch of skin
After mystery symptoms as a baby, she was diagnosed with a rare disorder that forces her to shun all UV light. She got to be ...
5 天
Buy Rating Justified by Azitra Inc’s Advances in Rare Skin Disease Treatments and ...
Jason McCarthy, an analyst from Maxim Group, reiterated the Buy rating on Azitra Inc (AZTR – Research Report). The associated price ...
21 小时
Amgen's muscular disorder drug meets main goal in late-stage study
Amgen said on Tuesday that its drug helped improve daily activities including chewing and swallowing in patients suffering ...
People on MSN
1 天
Star-Studded Rock4EB! Concert Raises Over $1 Million for 'Butterfly' Skin Disease ...
raising over $1 million in one night for research and to find a cure for the rare skin condition. The foundation is the only ...
13 天
on MSN
New biomarkers can help target treatment for chronic skin disease sarcoidosis
Sarcoidosis is a rare systemic disease that afflicts an estimated 200,000 people in the U.S., more often people who are Black ...
1 天
Chennai infant suffers from rare black nose disease. What is it?
An infant in Chennai has been diagnosed with a rare condition called ‘black nose disease’. The condition is a new symptom of ...
5 天
US FDA approves Zevra's treatment for rare genetic disease
The U.S. Food and Drug Administration approved Zevra Therapeutics' drug for a rare and fatal genetic disorder, making it the ...
1 天
Thrissur native designs AI model to tackle challenges of rare diseases
Llama', an AI model that provides comprehensive insights on rare diseases, particularly Ehlers-Danlos Syndrome, aiding ...
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