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hemophilianewstoday
17 小时
No real COVID-19 infection impact seen for hemophilia patients
Having a COVID-19 infection had no significant impact on bleeding episodes or treatment for hemophilia patients, a study from ...
hemophilianewstoday
17 小时
Paying tribute to ballerina Michaela DePrince and her mother, Elaine
Columnist Jennifer Lynne honors the legacy of ballerina Michaela DePrince and her incredible family, which had a link to hemophilia.
hemophilianewstoday
2 天
New experiences at this year’s Bleeding Disorders Conference
This year’s annual Bleeding Disorders Conference began a week ago in Atlanta and ended on Saturday. While it wasn’t my first such event, it brought several new opportunities. For one thing, as my wife ...
hemophilianewstoday
3 天
Obizur effective as acquired hemophilia A treatment: Study
Obizur was effective and safe in treating severe bleeding episodes in Japanese patients with acquired hemophilia A, per a ...
hemophilianewstoday
2 天
Sharing my vulnerabilities with the bleeding disorders community
At the recent Bleeding Disorders Conference, columnist Cazandra Campos-MacDonald had the opportunity to share her story and be an advocate.
hemophilianewstoday
7 天
Joint problems in hemophilia A are common despite prophylaxis
Nearly two-thirds of men with moderate or severe hemophilia A have joint problems that cause pain and reduce their quality of ...
hemophilianewstoday
4 天
Focusing on a passion project is helping me deal with work burnout
Columnist Alliah Czarielle feels torn between work burnout and financial well-being, which is especially important with hemophilia.
hemophilianewstoday
14 天
MGX-001 gene-editing therapy shows promise in preclinical study
The investigational gene-editing therapy MGX-001 for hemophilia A has shown promising safety and durability in an ongoing ...
hemophilianewstoday
11 天
Enhanced FVIII hemophilia A gene therapy may control bleeds better
A gene therapy designed to provide hemophilia A patients with a highly functional version of factor VIII (FVIII), the blood ...
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