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hemophilianewstoday
20 小时
Paying tribute to ballerina Michaela DePrince and her mother, Elaine
Columnist Jennifer Lynne honors the legacy of ballerina Michaela DePrince and her incredible family, which had a link to hemophilia.
hemophilianewstoday
20 小时
No real COVID-19 infection impact seen for hemophilia patients
Having a COVID-19 infection had no significant impact on bleeding episodes or treatment for hemophilia patients, a study from ...
hemophilianewstoday
2 天
New experiences at this year’s Bleeding Disorders Conference
This year’s annual Bleeding Disorders Conference began a week ago in Atlanta and ended on Saturday. While it wasn’t my first such event, it brought several new opportunities. For one thing, as my wife ...
hemophilianewstoday
2 天
Sharing my vulnerabilities with the bleeding disorders community
At the recent Bleeding Disorders Conference, columnist Cazandra Campos-MacDonald had the opportunity to share her story and be an advocate.
hemophilianewstoday
3 天
Obizur effective as acquired hemophilia A treatment: Study
Obizur was effective and safe in treating severe bleeding episodes in Japanese patients with acquired hemophilia A, per a ...
hemophilianewstoday
4 天
Focusing on a passion project is helping me deal with work burnout
Columnist Alliah Czarielle feels torn between work burnout and financial well-being, which is especially important with hemophilia.
hemophilianewstoday
7 天
Fighting for proper care as a woman affected by bleeding disorders
Columnist Jennifer Lynne talks with Ashley Zebley, a carrier of hemophilia, about the battle to get proper care for her bleeding symptoms.
hemophilianewstoday
7 天
Joint problems in hemophilia A are common despite prophylaxis
Nearly two-thirds of men with moderate or severe hemophilia A have joint problems that cause pain and reduce their quality of ...
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