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SMA
1 天
Zolgensma alone helps children with SMA type 1: Real-world study
Children with SMA type 1 treated in infancy with Zolgensma alone showed motor and lung/bulbar muscle gains over two years of ...
SMA
6 天
After more than a decade without one, I have a new power wheelchair
It'd been more than 10 years since columnist Sherry Toh had a power wheelchair, and she's thrilled about the independence her ...
SMA
4 天
I found myself in unfamiliar territory when my ventilator died
Columnist Alyssa Silva found herself in unfamiliar territory when her BiPAP machine quit before bedtime, threatening her ...
SMA
4 天
Standardized SMA newborn screening may aid early treatment
Differences in SMA newborn screening practices in the U.S. could impact referral patterns or the timing of therapeutic ...
SMA
11 天
Finding a temporary escape from the challenges of living with SMA
Living with SMA can take a toll on columnist Alyssa Silva's mental health, but she finds refuge and peace in trips to the ...
SMA
6 天
Surgery for scoliosis slows SMA lung function decline: Study
Surgery for scoliosis, a sideways curvature of the spine, slowed lung function decline in untreated SMA types 2 and 3, per. a study.
SMA
11 天
SMA treatment Zolgensma seen to benefit patients in real world
Real-world treatment with Zolgensma improves motor function in SMA children who carry at least four copies of the so-called ...
SMA
13 天
Why going to the emergency room prompts difficult memories
Going to the emergency room is uncommon for columnist Helen Baldwin, but it's always emotional, a reminder of her late son, ...
SMA
8 天
Ultrasound-aided Spinraza injection cuts needle redirections: Study
Using ultrasound to guide Spinraza injection in SMA adults reduced the number of needle redirections, a study found.
SMA
8 天
How the pandemic changed online school for the better
Returning to school for the first time since the pandemic, columnist Brianna Albers notices how online education has gotten better.
SMA
10 天
Life, One Cup at a Time
Alyssa Silva is a writer based out of Providence, Rhode Island. She was diagnosed with SMA type 1 in 1991 when she was just 5 months old. Aside from writing, Alyssa is the chief creative officer for ...
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